There is an exciting new research programme in CLIPPERS starting at the Mayo Clinic. If you have been diagnosed with CLIPPERS you can contribute to the research. They are seeking to gather medical records of diagnosed CLIPPERS patients from around the world (including tissue samples) to understand more about the condition, make diagnosis easier, and (in the long term) improve treatment. Dr Tobin is leading this research and has provided some more details below:
At the Department of MS and Autoimmune Neurology at the Mayo Clinic, we are attempting to better understand the diagnosis of CLIPPERS, its causes, outcomes and appropriate treatments. To do this, we are enrolling patients, diagnosed with CLIPPERS, into an observational study. If you have already been diagnosed with CLIPPERS and are interested in participating, you will be contacted by a member of our research team to complete a questionnaire. With your permission, we will retrieve your medical records from your doctors, including MRI scans, and if possible brain biopsy specimens. We may also ask you for an additional blood test, although this is not required. If you are interested in participating in this study, please contact Dr. Oliver Tobin.
At the Department of MS and Autoimmune Neurology at the Mayo Clinic, we are attempting to better understand the diagnosis of CLIPPERS, its causes, outcomes and appropriate treatments. To do this, we are enrolling patients, diagnosed with CLIPPERS, into an observational study. If you have already been diagnosed with CLIPPERS and are interested in participating, you will be contacted by a member of our research team to complete a questionnaire. With your permission, we will retrieve your medical records from your doctors, including MRI scans, and if possible brain biopsy specimens. We may also ask you for an additional blood test, although this is not required. If you are interested in participating in this study, please contact Dr. Oliver Tobin.
Contact Details:
W. Oliver Tobin, M.B. B.Ch., Ph.D.
Fellow, Department of Neurology
Assistant Professor of Neurology, Mayo Clinic College of Medicine
Secretary: 507-538-6414
Secretary: 507-538-6414
Fax: 507-266-4419
Email: tobin.william@mayo.edu
Updates
30th April 2014: 9 subjects have enrolled after seeing this notice.
20th August 2014: 12 subjects with brain biopsy are providing promising data. A larger cohort including those without tissue samples is being put togetther.
Updates
30th April 2014: 9 subjects have enrolled after seeing this notice.
20th August 2014: 12 subjects with brain biopsy are providing promising data. A larger cohort including those without tissue samples is being put togetther.
